Being compassionate to the needs of rare disease patients has been a pet concern for late Dr Nyapati Srinivasa Rao, 61, in his long association with the Indian Organisation for Rare Diseases (IORD) as a managing committee (MC) member. The humble and always gentle doctor had his feet deeply grounded on research in alternative medicineRead more
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Recent Posts
- Registration Open for Webinar on Global Burden of Rare Diseases: Issues and Challenges
- IORD Champions Rare Disease Advocacy at RDI Meeting in Barcelona
- Muscular Dystrophy Complexities: Insights from Experts and Parent Advocacy Group
- IORD to Host Indian Rare Diseases Nurses Network Webinar on 8th August
- Despite COVID Vaccine Success, Why India Lags in Rare Disease Drug Attention?
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
5th Floor, Vasant Towers,
Behind Shoppers Stop, Begumpet,
Hyderabad – 500016,
Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com