Known otherwise as Kleine-Levin Syndrome (KLS), Sleeping Beauty Syndrome is known to be one of the extremely rarest of rare diseases with medical literature recording only about 500 cases around the world. In this rare condition, the body craves excessive sleep for 15-20 hours (hypersomnolence or hypersomnia) and overeating (compulsive hyperphagia) with accompanying neurological tendenciesRead more
Categories
Recent Posts
- Registration Open for Webinar on Global Burden of Rare Diseases: Issues and Challenges
- IORD Champions Rare Disease Advocacy at RDI Meeting in Barcelona
- Muscular Dystrophy Complexities: Insights from Experts and Parent Advocacy Group
- IORD to Host Indian Rare Diseases Nurses Network Webinar on 8th August
- Despite COVID Vaccine Success, Why India Lags in Rare Disease Drug Attention?
Archives
- November 2024
- September 2024
- July 2024
- June 2024
- May 2024
- March 2024
- February 2024
- December 2023
- October 2023
- July 2023
- June 2023
- May 2023
- April 2023
- March 2023
- February 2023
- January 2023
- December 2022
- November 2022
- October 2022
- September 2022
- August 2022
- June 2022
- May 2022
- April 2022
- March 2022
- February 2022
- January 2022
- December 2021
- November 2021
- October 2021
- September 2021
- July 2021
- May 2021
- April 2021
- November 2020
- March 2020
- February 2020
- January 2020
- February 2019
- January 2018
- September 2015
IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
5th Floor, Vasant Towers,
Behind Shoppers Stop, Begumpet,
Hyderabad – 500016,
Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com