Citing space constraints in Census questionnaires and increase in workload of already-overworked enumerators with data related works, the Registrar General of India has turned down the proposal of the Indian Organisation for Rare Diseases (IORD), to incorporate patient data collection in the Census 2021 programme. “By just placing a column on rare disease in theRead more
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
5th Floor, Vasant Towers,
Behind Shoppers Stop, Begumpet,
Hyderabad – 500016,
Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com