In the course of our journey, we learned how the world-community has progressed to address Rare Disease patient issues and bring on the table new ideas, resources and a growing network of like-minded organisations.

Through its visionary leadership, IORD is working on Patient Awareness, Policy Advocacy and Orphan Drugs as a leading umbrella organization in India.

We provide guidance and support to patients organizations from its inception to various stages of their development and provide leadership to advance goals that we all share.

We serve the Rare Diseases Ecosystem, which includes Patient Representative Organizations / Healthcare NGOs, Medical Practitioners, Diagnostics & Treating Facilities, Orphan Drug Industry, Policy Advocacy with Government of India and various State Governments to serve the approximately nine crore Rare Disease Patients in a professional and an unbiased manner.

Please sign up the following form below to allow us to understand your organization comprehensively. It will help us to connect you globally in your disease-specific ecosystem, which includes international patient registries, speciality diagnostics, disease-specific collaborative platforms for research & development of orphan drugs, expert medical practitioners and advanced treatment facilities over a period of time.

We work in collaboration with you all for a unified voice for Rare Disease Patients and their common good.