Despite being born with the rare genetic disorder Duchenne Muscular Dystrophy (DMD), 15-year-old K S S R A Praneeth managed to carve a niche for himself in chess for the disabled. He is a former junior national chess champion for the disabled and has been awarded a special prize for his ‘skills’ in the BrilliantRead more
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- Registration Open for Webinar on Global Burden of Rare Diseases: Issues and Challenges
- IORD Champions Rare Disease Advocacy at RDI Meeting in Barcelona
- Muscular Dystrophy Complexities: Insights from Experts and Parent Advocacy Group
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- Despite COVID Vaccine Success, Why India Lags in Rare Disease Drug Attention?
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
5th Floor, Vasant Towers,
Behind Shoppers Stop, Begumpet,
Hyderabad – 500016,
Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com