This extract is from a poster presented by Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala, titled: “Role of Patient Support Organizations and Collaborative Genomics Programs in Enabling Participatory Medicine for Rare Diseases in India: A Case Study of Autosomal Recessive Congenital Ichthyosis” at the Undiagnosed Disease Network Conference, South KoreaRead more
Blog
Home Search results for "Healthcare Access"
Categories
Recent Posts
- Undiagnosed Disease Network Conference – Congenital Ichthyosis Case Study from India
- Strengthening Rare Disease Care in Andhra Pradesh: Sri M.T. Krishna Babu, IAS
- Manufacturing Drugs for Selected Rare Diseases: Dr Vinod K Paul
- Registration is now open for IORD World Rare Disease Day-2025
- IORD-RJS Launches 20-Day Rare Disease Awareness Campaign
Archives
- March 2025
- February 2025
- January 2025
- December 2024
- November 2024
- September 2024
- July 2024
- June 2024
- May 2024
- March 2024
- February 2024
- December 2023
- October 2023
- July 2023
- June 2023
- May 2023
- April 2023
- March 2023
- February 2023
- January 2023
- December 2022
- November 2022
- October 2022
- September 2022
- August 2022
- June 2022
- May 2022
- April 2022
- March 2022
- February 2022
- January 2022
- December 2021
- November 2021
- October 2021
- September 2021
- July 2021
- May 2021
- April 2021
- November 2020
- March 2020
- February 2020
- January 2020
- February 2019
- January 2018
- September 2015
IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
Reg. Office (India): Plot 397, Road 22b, Jubilee Hills, Hyderabad (Telangana) 500033, Telangana, India
Phone: +91-9666438880
Email: indiaord@gmail.com