A webinar organized by the Federation of Asian Biotech Associations-US chapter highlighted the socio-economic and emotional impact on the 70 million Indians affected by rare diseases (RDs).
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- Affordability of drugs for rare diseases a challenge
- Webinar Highlights Challenges Presented by Rare Diseases
- India should focus on critical health crisis posed by rare diseases: Prof. Ramaiah Muthyala
- NRDC Extended for Five Years to Boost Rare Disease Initiatives
- National Fund for Rare Diseases Announced: ₹974 Crore Allocated for 2024–26
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
5th Floor, Vasant Towers,
Behind Shoppers Stop, Begumpet,
Hyderabad – 500016,
Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com