There seem to be wide gaps in the FDA approval process as clinical trials data of 220 approved Orphan Drugs for rare diseases go missing in the US-based public registry ClinicalTrials.gov, finds a new study by three Indian researchers. The research study was undertaken by a three-member team of Mohua Chakraborty Choudhury, Indraneel Chakraborty andRead more
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
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Indian Organization For Rare Diseases
5th Floor, Vasant Towers,
Behind Shoppers Stop, Begumpet,
Hyderabad – 500016,
Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com