In a first of its kind comprehensive plan for management of any rare disease in India, the Union Finance minister Nirmala Sitharaman in her Budget 2023 presentation announced that the government would work on a mission mode for the elimination of the rare Sickle Cell Disease (SCD) from India by 2047. For this project, sheRead more
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
5th Floor, Vasant Towers,
Behind Shoppers Stop, Begumpet,
Hyderabad – 500016,
Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com