The Delhi High Court has introduced a landmark Standard Protocol to streamline rare disease management, ensuring continuous availability of therapies, local drug manufacturing, and time-bound treatment delivery.
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- World Rare Disease Day 2025: IORD Advocates for Policy & Awareness
- Prof Ramaiah Muthyala: A Call for Policy Change and Rare Disease Healthcare in Andhra Pradesh
- Undiagnosed Disease Network Conference – Congenital Ichthyosis Case Study from India
- Strengthening Rare Disease Care in Andhra Pradesh: Sri M.T. Krishna Babu, IAS
- Manufacturing Drugs for Selected Rare Diseases: Dr Vinod K Paul
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
Reg. Office (India): Plot 397, Road 22b, Jubilee Hills, Hyderabad (Telangana) 500033, Telangana, India
Phone: +91-9666438880
Email: indiaord@gmail.com