World Rare Disease Day was observed on Friday, here at Hyderabad Millions of people around the world observe Rare Disease Day on the last day of February. “Some rare diseases, such as cystic fibrosis, thalassemia, hemophilia, and Lou Gehrig’s disease ( ALS ), are well known to the public. India has already taken steps toRead more
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- Registration Open for Webinar on Global Burden of Rare Diseases: Issues and Challenges
- IORD Champions Rare Disease Advocacy at RDI Meeting in Barcelona
- Muscular Dystrophy Complexities: Insights from Experts and Parent Advocacy Group
- IORD to Host Indian Rare Diseases Nurses Network Webinar on 8th August
- Despite COVID Vaccine Success, Why India Lags in Rare Disease Drug Attention?
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
5th Floor, Vasant Towers,
Behind Shoppers Stop, Begumpet,
Hyderabad – 500016,
Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com