The Delhi High Court has introduced a landmark Standard Protocol to streamline rare disease management, ensuring continuous availability of therapies, local drug manufacturing, and time-bound treatment delivery.
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- NRDC Extended for Five Years to Boost Rare Disease Initiatives
- National Fund for Rare Diseases Announced: ₹974 Crore Allocated for 2024–26
- Delhi High Court Sets Up Standard Protocol for Rare Disease Treatment
- IORD & Rare Diseases in India: Impact, Initiatives & Challenges
- Registration Open for Webinar on Global Burden of Rare Diseases: Issues and Challenges
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
5th Floor, Vasant Towers,
Behind Shoppers Stop, Begumpet,
Hyderabad – 500016,
Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com